This is a picture of Aliyas neck...her c-spine isn't formed...so pretty much her neck isn't connected to her body. So the result she will eventually have to have surgery 2 or 3 years down the road. For now we are so so careful supporting her neck,.
Aliyas blessing day
Here is the screws we had to adjust from her jaw surgery. We had to adjust her jaw for 14 days instead of the 5 they told us. She ended up going through withdrawls from the narctics...which was so hard to watch!
Aliya now weighs 19 1/2 pounds. Look at all those little rolls on her arms.
Here is a little smile
First night in her crib...I think it was harder for me than for her!
The first time we painted those dainty little toes....aren't they so cute!
This is what they have to do for her sleep study...and we found out she still has central and obstructive apnea. Which is unfortunate since that is what the jaw surgery was supposed to fix.
Aliya's new play chair
Well it has been a long road the last few months. Aliya had her surgery in June and had the plates removed in August. So it was supposed to be the easy part having them removed...but unfortunately she got an infection and ended up having the Rhino Virus which caused us to be hospitialized for 6 days. So we went home and was on antibiotics for 2 weeks, we went back got blood work done and her numbers were good and that was a Tuesday and by Thursday night she had another fever of 102.9. She ended up having a UTI and kept us in the hospital for another 4 days. Wow...it was a rough few weeks. But Im happy to say we have been home and stayed home for about a month now!
No comments:
Post a Comment