Ballerina baby: Some more random pictures

Our sweet baby Aliya was born Monday, October 24. Tarasha was having complications with her pregnancy and with the baby not growing so she was induced last Monday with Aliya only weighing in at 2 lbs. 13 oz. 14 1/2 in. long with lots of blonde curly hair. She was born six weeks early at Logan Regional Hospital then quickly transferred to McKay Dee Hospital and after a week was transferred to Primary Children's where she could be watched over by the optomologist regarding her eyes and the pressure.
At first they wanted Aliya transferred back to McKay Dee as soon as they could, but liking the people especially the nurses at Primarys decided to keep her there. Aliya was diagnosed with Wolf Hirschhorn Syndrome of which Shane and Tarasha will be meeting with a specialist soon to discuss it. Part of the reason why Aliya came so early is because she wasn't growing which relates to this syndrome. Sweet baby Aliya has been a fighter since she was born and we will keep cheering and praying for her!

UPDATE

Aliya was able to come home on December 21st. What a great Christmas present that was! We all just can't get enough of her. We just love holding and kissing her! Since we have been home we have been able to meet with our Pediatrician here in Logan who is following Aliya very closely and has fallen in love with her just as we and many people have! She is still on oxygen and who knows how long she will have to stay on it. She has hearing aids but is still a newborn who sleeps all the time so we really haven't seen the benefits yet, but we know they are there. Who knew Shane and I would become nurses without going to school for nursing? We have learned a lot and I'm sure we have much more to learn! Aliya is the light of our lives and she has definately blessed us in oh so many ways! Don't get me wrong some days I say to myself...can I do this? I know with all my heart Heavenly Father chose us and trusted us with this sweet spirit. Who knows what the future holds, but we are ready. We are so lucky to have all the support we have had, and we can't thank all our family, friends and our community enough!

Ballerina baby

Tuesday, January 8, 2013

Some more random pictures

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