Aliya's One Year Pics

Come Celebrate Aliya's 1st Birthday

Can you believe it....Aliya is 1 on the 24th.  Wow what a year!  I am so so so grateful to have this little angel in our family!  It's amazing what she has been through and is still such a good good baby!  What a strong little girl we have!  Through this journey I have found the inner strength in myself!  It was so tough in the beginning...I definately shed many tears...but over the year I have become so strong.  Don't get me wrong I still have some days that are harder than others...but overall I have learned that we can all get through these challenges...and these challenges are what make us who we are and what we become!  I know Aliya was sent to us for a reason and a day doesn't go by that I am so grateful for her!!!!  I love being able to hold her and cuddle with her and watching her relax when I rub her head!  Oh the little things are what make everything worth all of these adventures we have had!  Words just don't explain how much love I have for her and my other girls!  L:ife is so precious!!!  Ok Ok onto the details of the party...
We are going to be at Pizza Pie Cafe on Saturday the 27th from 12-2.  The prices are as follows
Adults  $7.25     Adults drinks are $1.69  
Kids 9-11 $5.25 Kids drings are $0.99
        5-8  $4.25
        3-4   $2.25

Celebrating Aliyas 1st birthday with us is your gift to us!  We hope to see you there!

Here are some pictures...and another update well overdue!

 This is a picture of Aliyas neck...her c-spine isn't formed...so pretty much her neck isn't connected to her body.  So the result she will eventually have to have surgery 2 or 3 years down the road.  For now we are so so careful supporting her neck,.

                                                     Aliyas blessing day

 Here is the screws we had to adjust from her jaw surgery.  We had to adjust her jaw for 14 days instead of the 5 they told us. She ended up going through withdrawls from the narctics...which was so hard to watch!

Aliya now weighs 19 1/2 pounds.  Look at all those little rolls on her arms.

                                            Here is a little smile                                                               

                     First night in her crib...I think it was harder for me than for her!

 The first time we painted those dainty little toes....aren't they so cute!

 This is what they have to do for her sleep study...and we found out she still has central and obstructive apnea.  Which is unfortunate since that is what the jaw surgery was supposed to fix.

Aliya's new play chair

Well it has been a long road the last few months.  Aliya had her surgery in June and had the plates removed in August.  So it was supposed to be the easy part having them removed...but unfortunately she got an infection and ended up having the Rhino Virus which caused us to be hospitialized for 6 days.  So we went home and was on antibiotics for 2 weeks, we went back got blood work done and her numbers were good and that was a Tuesday and by Thursday night she had another fever of 102.9.  She ended up having a UTI and kept us in the hospital for another 4 days.  Wow...it was a rough few weeks.  But Im happy to say we have been home and stayed home for about a month now!