Well it looks like Aliya does have sleep apnea. She stopped breathing 14 times an hour, which is on the low end of severe. To solve the problem she will be having jaw surgery. Her chin is pushed back, which makes her have a small airway and what happens is that her tongue falls back into that small airway the obstructs her breathing. The ENT will have to put metal plates into her mouth and then little screws behind her ears to we can slowly move her jaw forward. We will turn the screws for 10 days and new bone will grow in the space she then will have to have the plates in her mouth for 6 weeks. Its amazing the technology, and the findings we have now a days! Hopefully this helps with her breathing and helps with her eating by mouth. We are slowly trying to introduce things to her by mouth. From all the suctioning, she has a negative reaction to anything coming close to her mouth. Also her reflux is so bad that her poor little throat is swollen and so red. Yep, we are going to try another med...and hopefully it will help and get it under control. We are slowly trying to make it a positive experience for her so hopefully she will be able to have the satisfaction of eating by mouth!
We also found out that she is too little for allergies, so it may be the reflux getting into her nasal cavities causing the excess secretions. The things we have learned in these short months from having our sweet angel with us! She is truly amazing! She tolerates so many things, and still she hardly cries!
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