Aliya's Blessing and upcoming jaw surgery

We were able to have Aliya's blessing yesterday. We decided to do it at our house and only had family come. What a special day it was! I am so grateful to have a husband who is able to give our baby girl a blessing. It was such a sweet moment to hear all the things he blessed her with! She is our little angel and words can't express how much love we have for her!
Well our next adventure soon awaits us...jaw surgery in a few weeks. When we had the ct scan done they noticed 2 vertibretes didn't form correctly so we had to meet with a neurosurgeon. The verdict is that she has no support in her neck and we have to be oh so careful with it. Luckily she has enough ligiments to support her spinal cord and if it does get pinched she won't be able to move her legs and arms. After talking to the neurosurgeon we will have to put her in a collar to protect her fragile neck....but not til after she heals from the jaw surgery. It was kinda a fluke we found out about her neck...but i am so so so grateful we did. I know everything happens for a reason. Eventually 2 or 3 years down the road she will have to have hardware placed in her neck to stabilize it...but right now she is too little and there is no bone to hook hardware to. One adventure after another...

Just some random pictures

Aliya is definitely growing.  She weighs 10 lbs 4 oz now!!!

Aliya at 6 months old.  

First time trying Cereal.  She didn't quite know what to think!

CT Scan

Well we were able to get Aliya's CT scan without having to put her under after 3 different tries.  We tried the first time while she was awake and she was too wiggly, then while we were waiting for the nurses to get sedation, she fell asleep so we tried again and we only needed another minute when she woke up and started moving again.  So we tried the sedation but unfortunately it did the opposite of relaxing her...it made her agitated and have a lot of secretions so we had to keep suctioning her.  So then we were in recovery having labs done for our Nephrology (kidney) appointment,  she cried the whole time...which was about 30 minutes straight which is a lot because she hardly cries!  As a result of all the crying she wore herself out and fell asleep so we were able to get the scan.  We only needed her to be still for about 3 minutes so I am so glad we didn't have to make another appointment with the outpatient clinic to put her under to get the scan.

THE RESULTS:  So the ENT wants to do the jaw surgery but on the CT scan it showed Aliya had anomalies of her Cervical Spine which is located in her neck.  To my understanding by what the Neurologist said it didn't form correctly...so now we have to go see a Neurosurgeon next week because the ENT wants to make sure it is stable enough to do the surgery.