Well it's been a long time so here is a little update...
First I wanted to thank my sister for starting this blog and for keeping up with it. I think things have settled down enough now that I will be taking over and I will do my best to keep it up to date.
Second I wanted to thank everyone for coming to Texas Roadhouse to support my family! What a great turnout we had. Also thank you Jen and Emily for putting it together and for everyone else that helped!
So Aliya is doing well. We had a rough time after her meds got changed and she had a hard time keeping what little she ate down...but we have it under control now and she is just doing the occasional spit up/throw up that a baby usually does. She is definately getting bigger. She has reached 7 lbs 2 oz and is now big enough for a g-tube which is a button put into her stomach and that will be how she eats. I'm a little nervous for the procedure because it is major surgery she will be having...but we have heard only good things about it.
She has had another hearing test since coming home from Primarys and her hearing isn't as severe as they told us it was. She will still need her hearing aids which we are so grateful for because we don't know if and how well she will be able to see. We live in a great place for resources. We have her enrolled in Early Intervention and we have great people come to our house to help us work on different things with her. We are going to do all that we can to make her the best she can be!!
